Cystic Fibrosis Foundation
This site is the major resource for information about cystic fibrosis (CF). Its mission is to seek the development of a cure and control for CF. The “65 roses,” a trademark of the CFF, stems from what the children call their disease, because the words are easier for them to pronounce. Much information regarding CF can be found in the links: what is cystic fibrosis, progress in research, patient and family education materials. Gene therapy and CF is a very interesting link. Deals with replacement of defective cells with normal cells in the airways of CF patients. The research is repeated every few months until scientists can cure the defective cells. Research is ongoing for a delivery system.CFF supports and accredits more than 115 CF care centers nationwide at major teaching and community hospitals, offering comprehensive diagnosis and treatment for people with CF and their families. You can find chapters and care centers in every state by clicking on a state on the map provided, or by entering the zip code for a particular state.
Visit the Cystic Fibrosis Foundation web site
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